We are building a stronger voice for people with chronic illness through participatory research. Click the button to find out how you can get involved in the project:
See our blog post series for some of the themes we’ll be exploring:
Disabled activist, Stella Young recently wrote: ‘The social model tells us that we are far more disabled by inaccessible environments and hostile attitudes than we are by our physicality. My disability comes not from the fact that I’m unable to walk but from the presence of stairs.’ How true is this of people who are… Read more Ill versus disabled – is there a distinction between the two?
I’m exactly the same as anyone else who’s gathered up a lifetime of training and experience. I have a lot of skills. People come to me for advice. They offer me work. They offer me money to do that work. And I can do the work, but it makes me ill. I don’t mind; I’ve… Read more Department for Snakes and Ladders?
by Ella Sumpter I have been given a power wheelchair that used to belong to my wife’s grandfather. I am very grateful. It will be very useful when I have to go to the local shops, or be somewhere where I am expected to stand around or stay on my feet a long time. It… Read more Stairs or stares? Obstacles to using a wheelchair with invisible illness
by Marion Michell You can listen to an audio-recording of Marion’s essay on Soundcloud. Lately the phrase you’re just not good enough has plagued me greatly. My art, my writing; my sleep, my rising; my ability to connect, converse, consider; my quests for energy and cure; upswing of any sort – everything seems veined with lack. M.E.… Read more Chronic Illness and Confidence