A response to Mo Stewart – Part One Thank you, Mo, for this very thoughtful and stimulating critique of Reclaiming Chronic Illness: an introduction to the Chronic Illness Inclusion Project. Two really important questions you raise stand out to me: 1. As you say, the meaning we attach to the term “chronic illness” in this… Read more Breaking away from a medical model of chronic illness
Introduction Congratulations to all involved with this very significant and relevant project. I note with interest the purpose of the CIIP discussion paper, and I would be most interested to learn if it is ever discussed by any future ‘policy makers’. As a former healthcare professional I can advise that when I was working the… Read more Mo Stewart responds to “Reclaiming Chronic Illness” discussion paper
In May, I started my first ever job which I found through a wonderful charity called Astriid. My job is five hours a week, working from home, with no set hours and amazingly supportive co-workers – the holy grail of employment opportunities for the chronically ill. Even so, it’s been a huge adjustment and ongoing… Read more Changing the system so that more chronically ill people can work
Recently I completed almost two years of Psycho-dynamic Therapy, and after dedicating more than 100 Tuesday afternoons to an intense examination of my life, I am now well enough to stop. This doesn’t however mean I am ‘cured’ or that my mental health issues have gone, it means I am presently no longer at risk… Read more Benefits and Mental Health
Being a mother is quite simply the most life-affirming, joyful and challenging journey I have ever been lucky enough to undertake. It is a privilege to be my children’s mother and, in a parallel universe, I would have been there every step of the way. I would have been at the school gates every day… Read more Parenting with both hands tied behind my back
The big idea of the social model is to distinguish between ‘impairment’ and ‘disability’: ‘impairment’ is someone’s condition, ME (myalgic encephalomyelitis, or ‘chronic fatigue syndrome’) in my case, whereas ‘disability’ describes the way that impaired people are oppressed and excluded from society on top of their impairments. This challenges the assumption that disabled people need… Read more It’s not ME, it’s you – can the chronically ill embrace the social model?
Disabled activist, Stella Young recently wrote: ‘The social model tells us that we are far more disabled by inaccessible environments and hostile attitudes than we are by our physicality. My disability comes not from the fact that I’m unable to walk but from the presence of stairs.’ How true is this of people who are… Read more Ill versus disabled – is there a distinction between the two?
I’m sorry. I’m really sorry. Sorry I can’t make it to your birthday party, your family gathering, your funeral. Sorry, no, I can’t come over for tea on Friday. Why? No, I’m not doing anything else. But I’m going out for lunch the Tuesday before. Yes, I know that gives me Wednesday and Thursday to… Read more Sorry
I’m exactly the same as anyone else who’s gathered up a lifetime of training and experience. I have a lot of skills. People come to me for advice. They offer me work. They offer me money to do that work. And I can do the work, but it makes me ill. I don’t mind; I’ve… Read more Department for Snakes and Ladders?
by Ella Sumpter I have been given a power wheelchair that used to belong to my wife’s grandfather. I am very grateful. It will be very useful when I have to go to the local shops, or be somewhere where I am expected to stand around or stay on my feet a long time. It… Read more Stairs or stares? Obstacles to using a wheelchair with invisible illness