Chronic Illness Inclusion

Chronic Illness Inclusion


Biography - Jenny Lyus

Jenny is a disability rights and M.E. activist. She is Co-Investigator on our Chronic Illness Inclusion Project.

Recently Jenny has been using her limited energy to agitate for better ME research and against inappropriate clinical guidelines, with ME Action Network and the stopGET campaign.

During her 19 years lived experience of chronic illness disability, Jenny has also had project management style roles in two charities which promote the Social Model of Disability, Action on Disability and Work UK (formerly the Vassall Centre Trust), and disabled children’s charity Time2Share.

She is interested in building on ideas from the Social Model of Disability and the ‘Spoon Theory’ to find better ways to represent the unheard and unmet needs of the chronic illness disability community.

Jenny can almost always be found at home with her Miniature Schnauzer. She enjoys creating surface designs for fabric, mugs and cards with her partner but can more often be found in front of a Netflix box set.

Jenny blogs at and is on Twitter @TweetTipsForME