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Chronic illness and social exclusion series 1: EDUCATION

Geoff Jones recalls his experiences of education as a child with severe chronic illness Access to education is often overlooked when considering chronic illness and social exclusion. Education is particularly relevant if those affected become ill during childhood. In today’s Britain, where a university education has arguably become the norm, those becoming chronically ill during… Read more Chronic illness and social exclusion series 1: EDUCATION

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Spoonie Utopia*: an inclusion thought experiment

“Under this Pro-Spoonie government I still don’t feel well but I do feel better about myself and my role in society.” *‘Spoonie’ is an informal term for people who live with chronic energy limiting illness. I am just home from going out in my new wheelchair. It was great to go out socially and not… Read more Spoonie Utopia*: an inclusion thought experiment

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Accessing Support: A system geared toward physical impairments.

Sarah Campbell asks whether chronic illness needs its own set of responses to social security, employment and social care. I have a combination of both a chronic illness and a progressive muscle condition, offering me insight into both “worlds” of invisible fluctuating illness and visible physical impairment. Some issues are extremely different while others are… Read more Accessing Support: A system geared toward physical impairments.

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From sick to disabled

From “sick” to “disabled”: my own journey

Catherine Hale looks back at how half a lifetime of chronic illness slowly changed her understanding of “disability”. I’ve been sick for nearly 30 years. That’s the whole of my adult life. I always thought of myself as “disabled” in the sense of being very incapacitated. During my bedbound phase I couldn’t wash, feed myself,… Read more From “sick” to “disabled”: my own journey

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