I’m exactly the same as anyone else who’s gathered up a lifetime of training and experience. I have a lot of skills. People come to me for advice. They offer me work. They offer me money to do that work. And I can do the work, but it makes me ill. I don’t mind; I’ve… Read more Department for Snakes and Ladders?
by Ella Sumpter I have been given a power wheelchair that used to belong to my wife’s grandfather. I am very grateful. It will be very useful when I have to go to the local shops, or be somewhere where I am expected to stand around or stay on my feet a long time. It… Read more Stairs or stares? Obstacles to using a wheelchair with invisible illness
by Marion Michell You can listen to an audio-recording of Marion’s essay on Soundcloud. Lately the phrase you’re just not good enough has plagued me greatly. My art, my writing; my sleep, my rising; my ability to connect, converse, consider; my quests for energy and cure; upswing of any sort – everything seems veined with lack. M.E.… Read more Chronic Illness and Confidence
Rebecca Boot tackles the painful subject of employability I’m back at university, studying again after my body threw a fantastic tantrum the last time I tried it. My university has a real focus on employment and one of the highest graduate employment rates in the country. That is great, everyone wants to be able to… Read more 2. EMPLOYMENT Chronic Illness and graduation
Geoff Jones recalls his experiences of education as a child with severe chronic illness Access to education is often overlooked when considering chronic illness and social exclusion. Education is particularly relevant if those affected become ill during childhood. In today’s Britain, where a university education has arguably become the norm, those becoming chronically ill during… Read more Chronic illness and social exclusion series 1: EDUCATION
“Under this Pro-Spoonie government I still don’t feel well but I do feel better about myself and my role in society.” *‘Spoonie’ is an informal term for people who live with chronic energy limiting illness. I am just home from going out in my new wheelchair. It was great to go out socially and not… Read more Spoonie Utopia*: an inclusion thought experiment
Sarah Campbell asks whether chronic illness needs its own set of responses to social security, employment and social care. I have a combination of both a chronic illness and a progressive muscle condition, offering me insight into both “worlds” of invisible fluctuating illness and visible physical impairment. Some issues are extremely different while others are… Read more Accessing Support: A system geared toward physical impairments.
Catherine Hale looks back at how half a lifetime of chronic illness slowly changed her understanding of “disability”. I’ve been sick for nearly 30 years. That’s the whole of my adult life. I always thought of myself as “disabled” in the sense of being very incapacitated. During my bedbound phase I couldn’t wash, feed myself,… Read more From “sick” to “disabled”: my own journey