“Under this Pro-Spoonie government I still don’t feel well but I do feel better about myself and my role in society.” *‘Spoonie’ is an informal term for people who live with chronic energy limiting illness. I am just home from going out in my new wheelchair. It was great to go out socially and not… Read more Spoonie Utopia*: an inclusion thought experiment
Sarah Campbell asks whether chronic illness needs its own set of responses to social security, employment and social care. I have a combination of both a chronic illness and a progressive muscle condition, offering me insight into both “worlds” of invisible fluctuating illness and visible physical impairment. Some issues are extremely different while others are… Read more Accessing Support: A system geared toward physical impairments.
Catherine Hale looks back at how half a lifetime of chronic illness slowly changed her understanding of “disability”. I’ve been sick for nearly 30 years. That’s the whole of my adult life. I always thought of myself as “disabled” in the sense of being very incapacitated. During my bedbound phase I couldn’t wash, feed myself,… Read more From “sick” to “disabled”: my own journey